What's The Matter With Me? Podcast

Real talk about living with multiple sclerosis and trigeminal neuralgia.

Category: Whats The Matter With Me? Podcast

  • Going to have micro vascular decompression surgery (MVD)

    Going to have micro vascular decompression surgery (MVD)

    Trigeminal neuralgia hurts like hell. I’m going to have micro vascular decompression surgery, get out of pain, get off these pain medications, and contribute to my family again. I signed up to have surgery. They’re going to pop a hole in my skull and operate on my trigeminal nerve. It’s called micro vascular decompression surgery.…

  • A Familiar Nausea

    A Familiar Nausea

    wtmwm s3 e12 i awoke up this morning to a familiar nausea. i’d forgotten to take my pills the night before. still can’t get it straight. got me thinkin’…. this podcast – like me – is disabled.  not only a podcast about disability or adversity, CHALLENGES or perserverance, this podcast itself is disabled maybe i…

  • Pain / Withdrawal Cycle

    Pain / Withdrawal Cycle

    Pain / Withdrawal Cycle Swallowing Evaluation AKA Diagnostic Fluoroscopy Medication (mis-)management traps me in the the pain & withdrawal cycle. Read more for my visit to the nurse practicioner, diagnostic fluoroscopy, postlude with John John & more. Podcast: Play in new window | Download | EmbedSubscribe: Apple Podcasts | RSS | Subscribe

  • Disability Technology

    Disability Technology

    Google’s Project Euphonia helps disabled people communicate ALSO, Five Weeks of Mayhem, Pain &Drug Withdrawal (Picking up the pieces) Podcast: Play in new window | Download | EmbedSubscribe: Apple Podcasts | RSS | Subscribe

  • Happy Birthday Koko

    Happy Birthday Koko

    Man!– I have trigeminal neuralgia, my face hurts. Ow! The kids had to go away, it hurt so bad I couldn’t handle it and I freaked out. I’ve been staring at plants in the garden. I grilled chicken for the whole family, had dinner and couldn’t eat it, because my face hurt. Tomorrow is Koko’s…